Monday, December 31, 2012

Wearing Clothes!!

Jack is doing better. He is up to 2 pounds, 12 ounces. He is still on nasal O2, no vent. Tierney went to see him today and he was wearing clothes! So cute.

He had another head ultrasound today but they didn't have the results yet. He is eating 24 cc a feed. He is getting breast milk ( thanks Tierney!) and it is being supplemented with a calorie booster.

I am going there Thursday. I can't wait to see him and I am hoping that I can hold him. He is over a month old now and he has never been held and cuddled.

Happy new year to everyone!!!

Wednesday, December 26, 2012

Doing Better

Jack extubated himself yesterday. He grabbed the tube and pulled it out. They had orders to leave it out if he did that. He is on the nasal o2. Yesterday he was doing pretty poorly with that and they said it was likely he would be back on the vent soon.

When I called today they said he started to do better and he is still only on the nasal O2. He is still having some oxygen saturation drops and heart rate drops but considerably less than yesterday. They are going to leave him on just the nasal O2 for now but there is a possibility that may change.

He continues to do well with his feeds and has gained another ounce. He is now 2 pounds, 10 ounces.

Julianna and I had a nice Christmas but she is sick. She had a high fever on Christmas Eve and then again last night. We went to PM Pediatrics last night. They cultured her throat and checked her ears, etc. They did not find anything and said it was likely that it is some type of virus.

We went to my sister Alice Anne's house and my Dad and Betty were also there. We had a nice time with everyone. Santa brought Julianna a ton of gifts. Her favorite is the Barbie Dream House.  I am thrilled that he finally brought that. I always wanted it when I was a kid. LOL.

I hope everyone had a great Christmas!!!

Monday, December 24, 2012

Back On The Ventilator.

Jack is back on the ventilator. He had two prolonged periods of apnea that lead to his heart rate slowing down quite a bit. After the second time they re-intubated him and put him back on the ventilator. He is doing a lot better on the vent and they said his color got a lot better.

They said I should not get too upset about it because it is pretty common for preemies as early as Jack. They also said they are going to try to get him off the vent again soon. They had moved him into the step down unit when they took him off the vent. They are going to keep him there even though he is back on it.

They did tell me this would be a series of ups and downs. Uggghh.

Friday, December 21, 2012

Off The Ventilator!!!

Great news!! Jack is off the ventilator!!! He is on nasal O2 at 25% and he has had no periods of apnea. He is doing great! He is also up to 20cc per feed.

Thanks for all the prayers. They are working!

Beefing up!

Jack has gained some weight. He is currently 2 pounds, 9 ounces. So he is up 3 ounces from his birth weight. He did lose weight at first so this is not too bad.

He is eating 18.5cc at each feed. He is eating so well that they removed his PICC line. He is now getting all nutrition through the oral gastric tube.

They had to raise his oxygen concentration on the ventilator to 25%. That is still pretty good. They did tell me to expect that it will go up and down.They have his breaths per minute at 28. He does over ride the vent sometimes and breathe on his own.

He is doing pretty good. He still has a long way to go. Thanks for all the thoughts, prayers and good thoughts!

Tuesday, December 18, 2012

Pictures

Jack is doing better all the time. He still has issues, but I am hoping he turned a corner. His ventilator setting is at 22% for oxygen. He is now up to 15cc per feed. He is doing so much better than he was last week. I am hoping he stays on his current path. Yayyy Jack!!
 
Julianna and I went to see the Radio City Christmas show today. We also went to Rockefeller Center to see the big tree and then to Macy's to see Santa. On the train on the way home we saw a huge rainbow. I think that is a sign of good things to come!
 
 
 
 
 
Jack in his Christmas outfit. I bought the Santa hat at Petco. It is for a Chiuaua.

                                                             Jack holding my finger.

                                                                Jack snoozing.


                                                       Julianna and me at the big tree!!
                                                                   Julianna, big tree.

                                                          Julianna with Santa at Macy's.

Sunday, December 16, 2012

Jack is Doing Great!

Jack is doing great! It was really nice to see him. He was taken off his oscillator this morning and put back on a regular vent. His blood gases were really good so they thought he could handle it. He is only on 25% oxygen. That is great because regular room air is only 21% oxygen. He is off the photo therapy lights but he does have bronze baby syndrome. That should resolve on its own over time.

He is eating 11cc over an hour and a half through the gastric tube. He makes sucking motions all the time and sucks on his endotracheal tube. They are still keeping him sedated. When his morphine and ativan wear off he moves around quite a bit. He can push his whole body up on his feet. That is pretty good especially since he has a PICC line on one foot.

Tierney is still pumping for him and he loves that milk. I got to have lunch with Tierney and that was very nice.

I have to leave very early tomorrow. My plane takes off at 6am. I can go see him anytime so I will see him just before I have to leave.

I took a bunch of pictures and I will post them when I get home.

Friday, December 14, 2012

What Is Happening in this World?

I am going to see baby Jack today. I dropped Julianna off at daycare. I won't see her until Monday afternoon. That makes me sad, but now with the news of this horrible elementary school shooting in Connecticut I just want to run over to her school and hug the stuffing out of her.

A person who lost a spouse is called a widow. A child who lost a parent is called an orphan. There is no word for a parent who lost a child, because there are no words.

Thursday, December 13, 2012

Eating Like A Champion

Jack's feeds are up to 5cc every three hours and he is tolerating them! I am so proud of him.

The nurse said they had to raise his oxygen settings but he is still only at 35% oxygen, via the oscillator, so that is pretty good.

He is jaundiced again so he is back under the photo therapy lights. They said that is pretty routine and most small premature babies will go under them a number of times before they are discharged.

He is somewhat swollen. He is on lasix ( a diuretic) to try to reduce that swelling. He is also on steroids to try to keep his lungs from swelling.

All in all he is having a good day. I will get to see him late tomorrow night. I can't wait!

Thanks everyone for all the prayers, good wishes, assistance with child care and everything else. And thanks Tierney for visiting Jack and giving him love!!!!

Wednesday, December 12, 2012

Super Great Eater!

Jack is really eating a lot. They raised his feeds to 3cc a time. It goes over a few hours but before they start a new feed they aspirate to see if there is any residual. He has had hardly any residual. That is great. I think eating is going to make a big difference for Jack.

His x-ray was good. His blood gas was good. They changed his position and are elevating him a bit because they are worried he will swell because he has been in the same position for so long. He is still getting morphine because they do not want him to get agitated or uncomfortable. His oscillator settings are staying the same.

I am watching the 12-12-12 concert. I was going to go to it but there is too much going on here. I would love to have gone but seeing it on tv is good too. Bruce Springsteen is on right now, my favorite, so I must go check it out!!

He Is Eating!!!

"Out of difficulties grow miracles"  ~  Jean De La Breyere

I called tonight and the nurse told me that Jack tolerated three feedings!!! I am over the moon about this!! They were each 1.5 cc and given to him over a 2 hour period, but he tolerated it.  I really feel that this could make all the difference for Jack. I think if he can just eat and put some weight on he will get stronger and do well.

He got another blood transfusion today. His ventilator settings stayed the same. He will have an x-ray of his chest and abdomen tomorrow. (They only need one film for his tiny body.)

I watched my Dad tonight and it was a tough evening. He was really difficult and Julianna stayed awake until about 11 pm. It should be interesting getting her up tomorrow. They have some sedatives but they don't do anything. I get through it by mentally amusing myself. Thinking things like, should I crush his pill and have him snort it? Or, can we simply ask the doctor for whatever the Wild Kingdom guy (Jim) used in the dart gun that could stop a charging rhino in seconds?

Any disruption in his regular routine makes him really difficult. I want to help so Betty can get a bit of a break but I must admit that it is becoming super hard. First I had to take him with us to Julianna's violin lesson. He was super good there. I picked up food and we went back to his house. It went down hill from there .He was trying to hide my sneakers, wearing my jacket, peed on the bathroom floor (not missed, directly),  tried to carry Julianna and she was yelling that he was squeezing her, put three pairs of pants on (at the same time) when I was trying to get him to put pajamas on, tried to open presents Betty wrapped to send out, threw out mail and on and on. Most Alzheimer's patients get worse at night and he is no exception.

It was stressful with my Dad but when I got home I called about Jack and now I am super happy. I sure hope he decides eating is good and he keeps it up. Way to go Jack!

Tuesday, December 11, 2012

Raised the Vent Settings

I called about Jack. They said his blood gas was not good and they had to raise the ventilator settings. The nurse said he is doing better with the higher settings. They were getting ready to do another blood gas to see how that was.

They weighed him yesterday and he lost another ounce. They are going to try a feed some time today.

Tierney visited him yesterday and was able to bring him more milk. I sure hope he gets to eat some of that milk soon. If he would only get the feeding down I think it would make a world of difference.

I sure hope to get some positive news soon. They did say he was resting comfortably. Time to rally baby Jack!!

Monday, December 10, 2012

Back Under the Lights, More Blood

I called about Jack about 3am Arkansas time because I was awake and of course I worry. The nurse said his bilirubin was getting a little high and he looks a little jaundiced so he will be going under the photo therapy lights again. His blood counts are also a little low so he will be getting another blood transfusion. She said he was not showing any symptoms of that and all his vitals are stable.

She also gave him a bath and changed his linens. She was not able to weigh him because he will not tolerate being off the ventilator for very long.

She said he was resting comfortably and is having a good night.

Sunday, December 9, 2012

He likes the oscillator, but not food

Jack is doing well on the oscillator. His O2 saturation and vitals have been great since he has been on it. They are not sure how long he will be on it but I hope he is on it long enough for his lungs to heal. They can't give me any real idea because each baby is different.

His last feed was a failure. A few hours after the feed they aspirated bile tinged residual. She didn't tell me how much but it was enough that they are stopping his feeds again. I asked her if this was normal and she said it was not normal but it was expected. In other words, this is common for babies as early as Jack. She said some take awhile to start feeding. She said his belly was soft and that is good. He will try again in a day or so. I don't know if he is losing weight because of all of this because they only weigh him on Mondays and Thursdays. They will let me know tomorrow what his current weight is.

It is not known why, but white male babies are known to do poorly in the NICU. I remember them telling me that when Julianna was in there. My cousin Kaitlyn told me they said that about her son too. "Wimpy white boy" syndrome. I told Tierney that and she said she is hoping Jack has some black in him to help him fight. I sure hope so too!

Saturday, December 8, 2012

Up and Down

One step up, two steps back.


Jack is gaining in some areas and losing in others. He had an x-ray that showed that his lungs are swelling. That is a bad sign and because of that they took him off the regular ventilator and put him on an oscillator or high frequency ventilator. The oscillator gives him and extremely high amount of breaths per minute (over 600)  but it doesn't have the force that the regular ventilator has. They are worried that his lungs are starting to get damaged from the regular ventilator.

When I was speaking to the nurse I said he was breathing on his own at first, then was on the ventilator. A few days ago they told me he had the lowest settings possible for the ventilator, which was a great sign. Now he was doing so poorly on it that he had to be put on the oscillator. I told her it seems like he was going backwards. She said he is. She said this back and forth is very common in babies born at his gestational age. Many of them do this for a very long time.

On a brighter note, they gave Jack 1cc of Alimentum at 10 am today. They aspirated later and they did not get any back. So he tolerated 1 cc and that is awesome!!! They will keep trying it and hopefully he keeps making progress there.

Julianna, Grandma, Pop-Pop and I all went to breakfast with Santa today. She had a great time. I had planned a lot of things for us to do around Christmas this year because I knew it would be hard to do with the baby next year. I am going to try to still do as many of the things we can when I am in NY. Next week I will be in Arkansas to see Jack. I will be thrilled to see him.

Friday, December 7, 2012

Resting


Tierney went to visit Jack tonight and she sent me this picture. Jack is on his belly. The large hand on him is called a Zaky. It is weighted with beans like a bean bag. It is designed to provide comfort to preemie babies and it simulates a hand holding them.He had a hard day so I am glad he is cozy now.
 

Feed Are Not Going Well

They tried to feed Jack three times over the last 24 hours and each time it did not go well. They gave him 1.5cc of breast milk. A few hours later they aspirated about half of it back out. They tried again on an empty belly and they got about 2/3 back. Then they tried again and got 1.2cc back. They gave him pedialyte and stopped feeding him.

They are measuring his belly to make sure it is not swelling. They are going to xray it in the morning. They have him getting nothing through the stomach for at least 24 hours. They have increased his intravenous rate to try to make up for some of the difference.

The nurse was very encouraging. She said this does not mean he has NEC but they have to make sure. She said his GI system is not ready for feeds but it could just be that he isn't developed enough yet. She said this is very common in babies this age.

I was really hoping it would go well and of course this is a big blow. It is so hard to be here when he is so sick and needy way down there in Arkansas. I am going on 12/14. I wish I could be there now. I do know he is in good hands but the worrying is agonizing.

I was off from work today but I watched my Dad so Betty could get out. It is hard to watch him too because his deterioration is so profound.

On a lighter note, Julianna is a little love. She is super excited about Christmas and Santa and her happiness fills my heart with joy.

Thanks everyone for all the prayers. Please keep them coming.

Thursday, December 6, 2012

No Bleed!!

Jack had his head ultrasound yesterday and he has no evidence of any brain bleed. They are going to repeat it on 12/31. I am so thrilled about this! Thanks for all the prayers!! They are working.

Tierney vistited Jack last night. She brought him more milk and she sent me some pictures. He is still on the ventilator. He was lying on his belly. He got the PICC line and it is in his leg.

He was weighed and his weight went down to 2 lbs 3 oz. He is going to start feeds today. The iv lipids and hyperalimentation he has been getting are only to try to maintain his weight. He will not gain weight from that. When they feed him they will put a few cc's of milk down his oral gastric (OG) tube. A few hours later they will aspirate from the tube to make sure it is digested. If it is they will continue with the feeds. If not, they will wait awhile. This is all the prevent necrotizing enterocolitis (NEC). NEC is a huge killer of preemies and staying away from this disease is Jack's next big hurdle to jump.

Question: What is Necrotizing Enterocolitis (NEC)?


Answer: Necrotizing enterocolitis, usually called NEC, is a condition where the intestines become infected and can begin to die. The disease usually affects premature babies, although term babies may also get NEC. Necrotizing enterocolitis is a serious condition that may require surgery, and has a high morbidity and mortality rate.

What Happens With Necrotizing Enterocolitis?

The inner lining of the intestines contains millions of bacteria. Usually, these bacteria (called the normal flora) are harmless and are part of the digestive process. In NEC, though, the bacteria begin to attack the intestinal wall. If the disease is not treated promptly, the intestinal wall will weaken and may die. Eventually, a hole can form through the bowel wall (a perforation), spilling its contents into the abdominal cavity. Bowel perforation is a medical emergency that requires immediate surgery and has a high mortality rate.


What Causes Necrotizing Enterocolitis?

Prematurity is the biggest risk factor, because preemies are born with immature intestines. Beyond that, doctors aren’t exactly sure what causes NEC. They know that the vast majority of infants who get NEC have begun milk feedings, but they also know that delaying feedings does not reduce the incidence of the disorder. Reduced blood flow to the intestines may also play a factor in the development of necrotizing enterocolitis, and babies who have heart conditions such as a patent ductus arteriosis (PDA) are at higher risk for developing NEC.

Symptoms of Necrotizing Enterocolitis

In the early stages of NEC, the infection causes the movement of food and air through the intestines to slow down or stop. This causes the baby’s belly to look bloated or distended. After feedings, food will be left in the baby’s stomach as gastric residuals. Eventually, enough food and air becomes trapped in the intestines that bowel loops will be visible on the baby’s belly. The belly will become painful and discolored, and the baby may begin vomiting bile or having bile-tinged residuals. Blood may be present in the baby’s stools, and the baby may begin to be bloated all over and have less urine output. The baby may also have a hard time regulating his temperature and may begin to have spells of apnea or bradycardia. Eventually, the bowel will rupture, causing widespread infection and respiratory distress.

Treating Necrotizing Enterocolitis

In the early stages, treatments for NEC include stopping milk feedings to let the bowel rest, giving antibiotics to treat infection, and removing air from the stomach. The baby will receive frequent x-rays to watch the disease’s progress.

If medical treatment is not working or if the bowel perforates, surgery is required. A surgeon will remove any dead sections of bowel and other infected material. The bowel will either be reattached or will be diverted to the abdomen through a stoma. Medical treatments will continue until the disease is resolved.


Outcomes of Necrotizing Enterocolitis

NEC is a serious disease, and about 25% of infants who recover from NEC will need treatment for long-term problems. Infants who are medically treated for NEC may have growth delays, trouble absorbing nutrients, and trouble with their livers and gall bladders. NEC also increases the risk of developmental delays.

Infants who have had surgery for NEC also show long-term effects from the disease. In addition to the effects of medical NEC, surgical patients may have severe absorption problems such as short bowel syndrome and have an increased risk of cerebral palsy and brain and eye problems.


Preventing Necrotizing Enterocolitis

Preventing premature birth is the best way to prevent necrotizing enterocolitis. If you are at risk for preterm birth, talk with your doctor about what you can do to lower your risk.

If preterm birth does occur, then feeding only breast milk can significantly lower the risk of NEC. Breast milk contains protective factors that encourage good intestinal development and can reduce the amount of harmful bacteria in the intestines. In one study, infants whose feedings contained at least 50% breast milk had a six-fold decrease in the incidence of NEC.


In addition to preventing preterm birth and feeding breast milk, giving steroids to the mother when premature birth is expected may reduce the risk of NEC. Also, supplementing breast milk and formula with different substances such as probiotics or immunoglobulins may help, although more research is needed.

Some Statistics About NEC


Over 90% of infants who develop necrotizing enterocolitis (NEC) are born preterm.

The incidence of NEC is between 5-10% of all very low birth weight infants (less than 1500 grams).

The mortality related to NEC in very low birth weight infants is between 20-30%

The mortality related to NEC in extremely preterm infants (less than 1000grams) is approximately 40-50%

Infants who weigh less than 1000 g at birth have the highest attack rates. This rate dramatically drops to 3.8 per 1000 live births for infants who weigh 1501-2500 g at birth.

Rates of NEC drop dramatically for infants born after 35-36 weeks' gestational weeks of age.

The average age of onset has been reported to be

20.2 days for babies born at less than 30 weeks' gestational age,

13.8 days for babies born at 31-33 weeks' gestational age, and

5.4 days for babies born after 34 weeks' gestation.



(Read more about Preemie Health Complications Statistics by preemiehelp.com)

Julianna had a small risk of NEC. She did not get it and did great with her feeds from the beginning. She was able to take her mik orally although they all said she would probablly not be able to do that. She proved them all wrong and took her 4cc's by bottle, digested it like a champ and demanded more a few hours later.

Jack has a much bigger risk but he has a greater chance of not getting it than he does of getting it. He will be at great risk for this until he is released from the NICU. The average age of onset of NEC for his gestational age is about 3 weeks.

So far Jack is doing great and I am thrilled with his progress.
Thanks for the encouragement, prayers and support!







Tuesday, December 4, 2012

PICC line today

I called about Jack and they said he is doing ok. He is going to have surgery to place the PICC line today.

Tomorrow he will have the head ultrasound to see if he had an intraventricular hemorrhage. They do not know what time it will be. His nurse said it depends on the schedule of the ultrasound technician. If he has it early they should know the results before the end of the day but if he has the test late they may not have the results until Thursday.

I am very worried about this test. If he has a bleed it is already there. If he has a serious bleed there is a strong likelihood he will never be normal. I know I will deal with whatever I have to, but I want him to be healthy. I want him to run and jump and climb and get into mischief just like his sister.

Most bleeds happen in the first four or five days of life. If he does not have a bleed it is unlikely he will get one.

When Julianna was born at 34 weeks they told me she had the possibility of all kinds of problems. She did have some delays and a lot of small preemie issues. However, she didn't have anything major. She is perfectly normal now. She is a bit small for her age but she doesn't seem to know that!

I hope for the same outcome for Jack.

Monday, December 3, 2012

Pictures

                           Tierney, who carried baby Jack, with me and Jack in the NICU.
 
Stephanie Scott, one of the directors of Simple Surrogacy (the agency I used) with me and Jack in the NICU. Stephanie flew in from Idaho to be there for me, Tierney and Jack. Simple Surrogacy has been amazing. I highly recommend them.

Echo Cardiogram Results

The NICU called me with the echo cardiogram results. Jack does have a PDA. However, it is small and they think it should close on its own. They will keep watching it so he will have more echo cardiograms in his future. I am happy that it is not a bigger one that will be a real problem for him.

They called me for consent for a PIC line. That is a surgically implanted intravenous line. He will need that because they are going to have to take his umbilical lines out soon.

The nurse said he is doing great. I can't wait to go see him.

Jack is hanging on


I called the NICU and they said Jack was doing ok today. He had a blood transfusion, his second so far. They didn't tell me how much this was was but the last one was 8cc. That is less than 2 teaspoons. He is getting blood to replace the blood they are drawing. He also received sodium bicarbonate (IV) today due to being slightly acidotic. He is still on the ventilator.

On Saturday they advised me that he had a heart murmur and they suspected he may have a PDA. That is a patent ductus arteriousis. That means that the hole for his fetal heart circulation likely did not close. That means he has a hole in his heart. They gave him medication to try to close it and he had an echo cardiogram today. We will not get the results of the echo cardiogram until tomorrow. I am hoping the medication worked and that it is fixed. Tierney came to the hospital to be with Jack during his echo cardiogram. She also brought more breast milk since she has been pumping for him.

Jack has not yet eaten. He will not be able to eat anything until they remove the umbilical catheters. He has one in this vein and one in his artery. After that they will put 4cc of breast  milk down his oral gastric (OG) tube. Then they will wait 4 hours and aspirate the tube to make sure he digested it. If he did he can continue with small feedings. If not, they will stop. Feeding a preemie that is not ready to feed is a huge big deal. They can get necrotizing enteric colitis (NEC). This is a huge killer of preemies and they have to be super careful with him. Even with the utmost care some babies get NEC and most do not survive it.

On Wednesday Jack is having an ultrasound of his head to make sure he does not have any bleeding into his brain. Intraventricular hemorrhages are very common in small preemies. They are graded from 1 to 4 with 4 being the most serious. They are most common in the first 4 or 5 days of life which is why they scan them when they turn a week old. The doctor said some babies with severe brain bleeds do very well because their brain is pretty plastic. In other words, their brains are still capable of making alternate pathways at this point. However, some babies do not do well with even small bleeds and develop cerebral palsey or other difficulties. The doctor said it is very rare for it to effect their intellect, it is usually physical.

It is all very scary. It is a bummer not to be there with him. I have scheduled a trip back for 12/14. Please pray for him.


 Jack's bear next to his monitor. The bottle next to it is 1/2 liter.

 Jack with his teddy bear. It is much bigger than him!


 I am holding Jack's hand when I had to say goodbye.

The priest baptizing Jack. He will have a real baptism when he gets home.

Saturday, December 1, 2012

The Baby is Here!!

I was called a few days ago and told to get on a plane to Little Rock because the baby was coming. Tierney had pelvic floor pain and then vaginal pain. It got worse and then seemed to come in waves so she went to the ER. They checked her and she was dilated to a 6. They immediately gave her steroids and had her almost upside down on an inversion table to try to keep the baby in at least 24 hours so she could get the second steroid shot. The steroids help the baby's lungs develop.

I was notified at about 2pm. I left work, went home, packed a bag for me and a bag for Julianna. I set up people to get Julianna and keep her for a few days. My neighbor gave me a ride to the train station. I got to JFK airport just in time to board my flight. It took off at 6pm. I had to fly to Charlotte, NC and switch planes to get to Little, Rock. When I was switching planes I got a message that said they were prepping Tierney for a c-section.

Baby Jack Richard Humphrey was born at 7:51 pm Arkansas time. Unfortunately my plane landed at 10pm Arkansas time. He was 26 weeks, 2 days gestation. He was big for his age at 2 pounds, 6 ounces and 14 inches. He is in the NICU at Baptist Hospital in Little Rock, Ark. It is a level 3 NICU (the highest level). He is critical but stable. He came out screaming and was breathing on his own for some time but had to be put on a ventilator. He was getting tired and forgetting to breathe. He is super tiny. I got to touch him but it will be some time before he can be held.

He has a lot of risk for a lot of issues. He has a heart murmur so they think he may have patent ductus arteriosus (PDA) it is very common in extremely premature infants. They gave him medication that may correct this problem. He will have an echo cardiogram tomorrow. He is at high risk for brain bleed so he will have a brain scan on Wednesday.

I have to leave here tomorrow. It makes me very sad to leave him but it is likely that he will be here 3 months. I am going to try to come here every other weekend. Everyone in this hospital is super nice. They said they will email me pictures of him every day. I can call anytime to ask about him.

Tierney had to have a c-section due to him being breech and being so small. She was not feeling great for awhile but was able to be discharged today. She is pumping milk for Jack. It will be sometime before he can have it and then it will be through the oral gastric tube. I am eternally grateful for all she has done. They do not know why Jack came so early. It might have been an infection and it might have been a blood clot on the placenta. The placenta went to pathology but it takes some time for the results to come back.

Tierney said she will visit Jack and continue to pump milk for him. The nurses and other staff at the hospital said they will give him extra love since I won't be here all the time.

Julianna was born at 34 weeks. I am amazed at the world of difference between a 34 weeker and a 26 weeker. The amount of intervention required to keep Jack alive is amazing. In Julianna's case she was a "feed and grow" preemie, meaning she didn't require much intervention. Jack certainly does. His care will be over $1 million. They applied him for medicaid. I advised the social worker that is was unlikely I would qualify for that. She told me that all babies born at under 1200 grams automatically qualify. It should cover all expenses my insurance will not cover. I am hoping that is true.

Jack was baptized yesterday. The priest came to do it. I figured it was best to have him covered. We will have a real baptism when he comes home.

Please pray for baby Jack. He has a very long road ahead of him. He is a real fighter and I am told he is doing great.

Thanks everyone who helped me out with Julianna, Smudge and with good thoughts and prayers!!