Bone Scan

"Time is too slow for those who wait, too swift for those who fear, too long for those who grieve, too short for those who rejoice, but for those who love, time is eternity."

~ Henry Van Dyke




I had my bone scan yesterday. I got there at 10:45. They injected me with the radioactive isotope at about 11 am. I had to come back at 1:30 for the scan after I was good and radioactive.

The scan itself took about 40 minutes. I could see my skeleton coming up on the screen but it was too far away for me to really see if any areas were darker. If an area has a problem it shows up darker because it absorbs more of the radioactive isotope. I could see that my knees were darker, but that is pretty normal. The rest I couldn't see. The techs didn't really look at it and they gave me no indication of anything. I have to wait for my doctor's office to call and that will be Monday at the earliest.

They always make you wait. It is tough. I am better at it now than when I was first diagnosed. At that time waiting for the bone scan and Ct scans was excruciating. I did get a call from my oncology office about my chest x-ray. It is normal.

I couldn't go near Julianna for 6 hours after the injection. Now I can, but she can't sit on or next to me for any long periods. With radiation it is a time/distance thing. So, she can be far away for long time periods but close for less. I also have to flush twice. I am supposed to fly on Wednesday. They said it should be out of my system by then but they are giving me a special note just in case. A lot of my friends ask me if I am worried about the radiation in the new scanners they have at the airport. It just makes me laugh. I think it is like spitting in the ocean for me.

I also found out some interesting information about the doctor who was monitoring me on the overnight when I had my original surgery. Yes, that's right, the idiot who had no idea what he was doing and caused me to lose the newly reconstructed breast. Well, it turns out he is a dentist and not a doctor. Yes, a dentist. He was doing a year of surgical residency in order to be an oral surgeon. So he didn't learn anything in medical school because he never went. I am outraged by this and I am looking into it further.

Thanks everyone for all the support! We love you all!

Journey so far, continued

August 16, 2009 - I spoke to my cousin Lisa. She was diagnosed with breast cancer four years ago. She is two years younger than me. She told me that she has the BRCA2 gene mutation.

August 18, 2009 - I went back to Dr. Maurer. She said this is a very small cancer and can probably be treated with a lumpectomy and radiation. I told her my cousin had the gene mutation. She said I needed to be tested immediately but it takes a few weeks to come back. If I have the gene mutation. I need a double mastectomy and my ovaries removed. She also suspects my Mom had breast cancer that went to the bone and not a type of bone cancer. We have all suspected this. I leave her office with a pile of prescriptions for tests. I pray that it hasn't gone anywhere else.

August 20, 2009 - I went for my genetic counseling appointment. The counselor was excellent. Her name is Bhuma Krishnamachari. He recently moved to NY from Chicago. She really knew her stuff. She told me the lifetime breast cancer risk if you have the gene mutation is 85%. If you have your ovaries removed premenopausally you can reduced that risk by 90%. That puts the risk around 4%. The risk for ovarian cancer and pancreatic cancer is also higher if you have the gene mutation. They drew the blood and will let me know the results in a few weeks.

August 21, 2009 - My Dad and Betty took Julianna and I had to go for an MRI of both breasts and a full body bone scan. I had to have an IV for contrast. After the MRI I had to go to the bone scan place. They injected a radioactive substance. I had to come back in three hours after drinking a lot of fluid. They need you to wait three hours so the radioactive substance has time to get into the bone. The tech was really nice and compassionate. She was in nuclear medicine for 44 years. After the scan I saw my skeleton on the screen in various views. I thought it was pretty neat to see. They told me before I left that it was fine but that is not the official report yet. They did see an inflammation in my lower jaw right where I have a crown that is bothering me. Interesting that they can pick that up.

I have to say all the medical people I have seen so far have been really great. I am lucky that I have encountered them even though it is for a bad reason. The waiting is really hard. The hardest part so far. All my friends and family have been so great. Thank you all for that. I really do appreciate it.