Showing posts with label Sloan Kettering. Show all posts
Showing posts with label Sloan Kettering. Show all posts

Tuesday, September 22, 2009

Finally Heard From the Surgeon's Office- Very Annoyed

So, I finally heard back from the surgeon's office. I called and called, no one calls back. When I spoke to Dr. Sclafani on Thursday she told me the surgery date should be 9/28 and she would call me back Friday to confirm it. I never got any call back. I called a bunch of times, no call back. There is no way to contact them on a weekend, no email or anything. Monday I started calling again. No call back. I called again today. After being on hold some time I finally spoke to Dr. Sclafani's assistant Vanessa. She said she is sorry she didn't get to call me back and she thought they could do the surgery on October 6th. When I told her Dr. Sclafani said she could do it on 9/28 she said that was booked and maybe she could get me in for 9/29 but if so I had to get to do pre-surgical testing today. If I can't get there today it would have to be 10/6. The last time I went to her office I waited over two hours so to do it today means making last minute provisions for Julianna. They had a 5 pm appointment. So we are back to 10/6.

So far I am so disappointed with Sloan I am so sorry I waited a month to get an appointment there. If this was someone working on my house instead of my body I would have dropped them by now. I got an appointment with a different plastic surgeon. It is for today. I emailed him over the weekend when I couldn't get in touch with anyone from Sloan. He called me back himself on a Sunday night. His name is Dr. Keller and he is supposed to be an expert on DIEP flap reconstruction. He said he thought I could have my surgery within two weeks.

I will post after my appointment with him.

http://www.breastflap.com/reconstruction-techniques/diep-flap-description.cfm

Tuesday, August 25, 2009

MRI Results :(

The radiologist called me today to discuss my MRI results. She said there are four areas in the right breast they are concerned with. This is two more than the mammogram or sonogram discovered. She wanted to schedule biopsies for the areas. I said no. I think she didn't get it. I said no. It won't be necessary. I just want it off. In fact, I just want them both off. She advised me too call my surgeon to discuss it.

I called my surgeon's office. They told me I could come in at 4:30 to discuss it with the doctor.

At 4:30 I saw Dr. Maurer. I asked her if it was necessary to biopsy the areas if I decided to go with a mastectomy. She said it was not, and that it would all be tested by the pathologist after it was removed. I told her I wanted them both off. She said ok.

They went through a bunch of things with me and then gave me a payment sheet. I have to come up with $29,000 and that doesn't include the surgery for the nodes if it is necessary. I do not have anywhere near that kind of money. I don't think I can go with Dr. Maurer.

If I go to Sloan Kettering it is completely free, insurance covers every penny. The problem with that is that I have to wait until September 11th for the appointment with their surgeon, Dr. Lisa Sclafani. She is supposed to be awesome but she is on vacation right now. I know it is not that far away, but I feel like I want this cancer out NOW. It is freaking me out that it is in there.

Dr. Maurer said the cells that started this cancer were probably in me for 5 or 6 years before they were large enough to discover. She agrees that it is growing but doesn't think a few weeks are a big deal. That is pretty much what everyone says, but I still want it out asap.

I am going to call Sloan tomorrow and see if I can get an appointment with a different surgeon. I hope they can see me sooner than 9/11.