Great news!! Jack is off the ventilator!!! He is on nasal O2 at 25% and he has had no periods of apnea. He is doing great! He is also up to 20cc per feed.
Thanks for all the prayers. They are working!
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Healthline Mentor
7 years ago
Friday, December 21, 2012
Beefing up!
Jack has gained some weight. He is currently 2 pounds, 9 ounces. So he is up 3 ounces from his birth weight. He did lose weight at first so this is not too bad.
He is eating 18.5cc at each feed. He is eating so well that they removed his PICC line. He is now getting all nutrition through the oral gastric tube.
They had to raise his oxygen concentration on the ventilator to 25%. That is still pretty good. They did tell me to expect that it will go up and down.They have his breaths per minute at 28. He does over ride the vent sometimes and breathe on his own.
He is doing pretty good. He still has a long way to go. Thanks for all the thoughts, prayers and good thoughts!
He is eating 18.5cc at each feed. He is eating so well that they removed his PICC line. He is now getting all nutrition through the oral gastric tube.
They had to raise his oxygen concentration on the ventilator to 25%. That is still pretty good. They did tell me to expect that it will go up and down.They have his breaths per minute at 28. He does over ride the vent sometimes and breathe on his own.
He is doing pretty good. He still has a long way to go. Thanks for all the thoughts, prayers and good thoughts!
Tuesday, December 18, 2012
Pictures
Jack is doing better all the time. He still has issues, but I am hoping he turned a corner. His ventilator setting is at 22% for oxygen. He is now up to 15cc per feed. He is doing so much better than he was last week. I am hoping he stays on his current path. Yayyy Jack!!
Julianna and I went to see the Radio City Christmas show today. We also went to Rockefeller Center to see the big tree and then to Macy's to see Santa. On the train on the way home we saw a huge rainbow. I think that is a sign of good things to come!
Jack in his Christmas outfit. I bought the Santa hat at Petco. It is for a Chiuaua.
Julianna and me at the big tree!!
Sunday, December 16, 2012
Jack is Doing Great!
Jack is doing great! It was really nice to see him. He was taken off his oscillator this morning and put back on a regular vent. His blood gases were really good so they thought he could handle it. He is only on 25% oxygen. That is great because regular room air is only 21% oxygen. He is off the photo therapy lights but he does have bronze baby syndrome. That should resolve on its own over time.
He is eating 11cc over an hour and a half through the gastric tube. He makes sucking motions all the time and sucks on his endotracheal tube. They are still keeping him sedated. When his morphine and ativan wear off he moves around quite a bit. He can push his whole body up on his feet. That is pretty good especially since he has a PICC line on one foot.
Tierney is still pumping for him and he loves that milk. I got to have lunch with Tierney and that was very nice.
I have to leave very early tomorrow. My plane takes off at 6am. I can go see him anytime so I will see him just before I have to leave.
I took a bunch of pictures and I will post them when I get home.
He is eating 11cc over an hour and a half through the gastric tube. He makes sucking motions all the time and sucks on his endotracheal tube. They are still keeping him sedated. When his morphine and ativan wear off he moves around quite a bit. He can push his whole body up on his feet. That is pretty good especially since he has a PICC line on one foot.
Tierney is still pumping for him and he loves that milk. I got to have lunch with Tierney and that was very nice.
I have to leave very early tomorrow. My plane takes off at 6am. I can go see him anytime so I will see him just before I have to leave.
I took a bunch of pictures and I will post them when I get home.
Friday, December 14, 2012
What Is Happening in this World?
I am going to see baby Jack today. I dropped Julianna off at daycare. I won't see her until Monday afternoon. That makes me sad, but now with the news of this horrible elementary school shooting in Connecticut I just want to run over to her school and hug the stuffing out of her.
A person who lost a spouse is called a widow. A child who lost a parent is called an orphan. There is no word for a parent who lost a child, because there are no words.
A person who lost a spouse is called a widow. A child who lost a parent is called an orphan. There is no word for a parent who lost a child, because there are no words.
Thursday, December 13, 2012
Eating Like A Champion
Jack's feeds are up to 5cc every three hours and he is tolerating them! I am so proud of him.
The nurse said they had to raise his oxygen settings but he is still only at 35% oxygen, via the oscillator, so that is pretty good.
He is jaundiced again so he is back under the photo therapy lights. They said that is pretty routine and most small premature babies will go under them a number of times before they are discharged.
He is somewhat swollen. He is on lasix ( a diuretic) to try to reduce that swelling. He is also on steroids to try to keep his lungs from swelling.
All in all he is having a good day. I will get to see him late tomorrow night. I can't wait!
Thanks everyone for all the prayers, good wishes, assistance with child care and everything else. And thanks Tierney for visiting Jack and giving him love!!!!
The nurse said they had to raise his oxygen settings but he is still only at 35% oxygen, via the oscillator, so that is pretty good.
He is jaundiced again so he is back under the photo therapy lights. They said that is pretty routine and most small premature babies will go under them a number of times before they are discharged.
He is somewhat swollen. He is on lasix ( a diuretic) to try to reduce that swelling. He is also on steroids to try to keep his lungs from swelling.
All in all he is having a good day. I will get to see him late tomorrow night. I can't wait!
Thanks everyone for all the prayers, good wishes, assistance with child care and everything else. And thanks Tierney for visiting Jack and giving him love!!!!
Wednesday, December 12, 2012
Super Great Eater!
Jack is really eating a lot. They raised his feeds to 3cc a time. It goes over a few hours but before they start a new feed they aspirate to see if there is any residual. He has had hardly any residual. That is great. I think eating is going to make a big difference for Jack.
His x-ray was good. His blood gas was good. They changed his position and are elevating him a bit because they are worried he will swell because he has been in the same position for so long. He is still getting morphine because they do not want him to get agitated or uncomfortable. His oscillator settings are staying the same.
I am watching the 12-12-12 concert. I was going to go to it but there is too much going on here. I would love to have gone but seeing it on tv is good too. Bruce Springsteen is on right now, my favorite, so I must go check it out!!
His x-ray was good. His blood gas was good. They changed his position and are elevating him a bit because they are worried he will swell because he has been in the same position for so long. He is still getting morphine because they do not want him to get agitated or uncomfortable. His oscillator settings are staying the same.
I am watching the 12-12-12 concert. I was going to go to it but there is too much going on here. I would love to have gone but seeing it on tv is good too. Bruce Springsteen is on right now, my favorite, so I must go check it out!!
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